Brittany's Cancer Blog

Total junk mode

Hello! 

Today I finally get to go home after a two week stay in Seattle. Graft vs Host of the liver struck hard and I’m really struggling with steroid issues.

Lack of sleep, major bloat, and some rage. It’s getting better now thank goodness! 

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Oh no, I don't know what that is but it sounds crappy. You will be recovering from home now? You don't have a reoccurrence of Myeloid Leukemia I take it. I hope all these issues calm down for you so you can begin living normally again and experience pleasures. We are with you all the way. Got Bless you.
No, luckily it is not a reoccurrence with AML. This is just one of the nasty side effects which can happen when my donor cells attack certain areas of the body. It’s very difficult to heal in a non linear fashion but it makes the good and healthier times so much more enjoyable. Bless you Deborah!
We have another member here who has GVHD (or HVGD?? I know they are separate & distinct from each other but I can't seem to get his straight). He is Stephen if you want to connect. he has not had recurrence either.
Hello Marcia, yes GVHD is common once a patient has had a transplant. Luckily mine is passing for now :)
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Hi Brittany,

Sorry to hear about GVHD flare up. I also had to take prednisone for GVHD in my gut. How much are you taking now and how long is the doctor going to keep you on steroids? I was on prednisone for 5 months and had a number of side effects, including chipmunk cheeks, lack of sleep, being constantly hungry, muscle loss and double vision. It's hard dealing with these side effects. Send me a private message if you want to talk about GVHD.
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Breathtaking

Hello there! 

This week I’ve noticed that my blood is likely getting low. I’m very breathy and tired. It’s a bit scary because I had my last infusion about two weeks ago. Normally I have been trending about 3-4 weeks between infusions. Speaking of breath...

I was asked what I’ve learned from my experience with cancer. I really had to think about it... Of course the usual: not to take health for granted, to live your life as if tomorrow may not come, and so on. But those are what I think become norms once diagnosed. 

I feel I’ve learned that life can be literally breathtaking. In the three weeks leading up to my surprise diagnosis I was having great difficulty with breathing. It felt as though my lungs were taking in mud and not air. I struggled with breathing on my own in the hospital and had to be placed on the ventilator a few times.

I’ve learned that life’s moments can be metaphorically breathtaking as well. Seeing the sacrifice and unyielding love from my mom and husband during treatment. That up close, personal, not letting you give up kind of love. That pushing my wheelchair through the halls in the middle of the night, leaving your husband every two weeks for a two week care taking shift, working from the hospital room, sleeping in a chair, unable to physically help kind of sacrifice. 

Or the tiny moments when my nieces blow me away with their personalities. When my niece learns a new word or gives us a surprising new facial expression. When her sister shares her sweet take on life or surprises us with her maturity. 

Some moments are breathtaking in a physical real way and some are metaphorically breathtaking. I’ve decided that as long as I can be breathtaken I’ll be grateful! 

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Mandak sent you a prayer.
3 people sent you a hug.
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That's an awful feeling. I have Chronic Hemolytic Anemia from SLE and I understand the breathing, I'm not near the caliber of AML, but climbing stairs are difficult at times. I hope you breathe well soon. God bless🙏🏻
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These are the same kinds of lessons we have learned through cancer. We may have a worrisome appointment or scary test in a week, but we still have today and this week, so we live for the moment. We enjoy the grandchildren as much as we can.

I wish you the best through your treatment.
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I was diagnosed with COPD 5 years ago and was taking Spiriva and Advair plus nose sprays to slow down progression. My symptoms have always been shortness of breath, and dizziness. I am a 54 year old male. the Spiriva wasn’t really working and I could not tolerate them for long due to severe side effects, so this year our family doctor started me on Natural Herbal Gardens COPD Herbal mixture, We ordered their COPD herbal treatment after reading alot of positive reviews, i am happy to report with the help of Natural Herbal Garden natural herbs I have been able to reverse my symptoms using herbs, my symptoms totally declined over a 9 weeks use of the Natural Herbal Gardens COPD natural herbal formula. My COPD is totally reversed! Their official web page is www . naturalherbalgardens . com After the herbal treatment I also finally was able to give up smoking after 20 years. I ‘m thankful to nature
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Vital Info

Posts

April 29, 2018

Washington

December, 1988

Cancer Info

Acute Myeloid Leukemia

Acute Myeloid Monocytic Leukemia

February 21, 2017

No

Sorafinib (Nexavar)

Yes

The days when it takes every single moment to fight to live.

To fiercely show the people I love how much I love them. Also to really live my days because I had to fight so very hard for them.

I appreciate any support I can get. I’m trying so hard to fight with grace and fiercely!

Grace, to allow me to try my hardest and accept me where I am in my journey.

Seattle Cancer Care Alliance

Try to stretch and walk each day to keep your mobility.

I fight with the mindset that cancer will not win. It was hard and I had moments of negativity but I tried to contain them.

No

Shortness of breath, cough, fatigue, loss of appetite

Allogeneic stem cell transplant, 07/22/2017

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